What is Ehlers Danlos Syndrome?
The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.
Each type of EDS is caused by variants in specific genes that provide the instructions for making collagens and related proteins. Some types of EDS are associated with multiple different genes. The genetic cause(s) of hEDS have not been identified.
Connective tissue is found throughout the body, where it provides support, protection, and structure to other parts of the body. Connective tissue disorders are caused by issues that prevent connective tissue from functioning properly.
Collagen is the primary component of connective tissue. There are different types of collagens with different functions. The Ehlers-Danlos syndromes are caused by changes in the genes that affect the structure and function of collagen and related connective tissue proteins.
(The Ehlers Danlos Society, 2024)
Why Choose The Voice Centre?
Because we understand. The Voice Centre North East was created by an individual who has personally experienced the challenges of living with a condition that can dominate your life. Giorgia has dedicated her life to researching and managing this condition, so you can trust that you are in safe hands. The centre is here to provide you with the support and expertise you need to overcome any obstacles and regain control of your voice.
Get to Know Us
The Voice Centre North East is more than just a wellness centre - it's a community, a place where you can find healing and restoration. We believe that by treating the whole person, not just the physical symptoms, we can help you enjoy lasting health and vitality. Our focus is on providing customized treatments that are tailored to your unique needs, whether you're suffering from chronic pain, fatigue, or stress. With a team of experienced professionals on hand, we are confident that we can help you achieve your wellness goals.
A Note To Fellow Zebras
"No one understands us, it is both visible and invisible, it is impossible. We should not have to beg for the same care as those without EDS, but of course, we do. We spend our lives explaining that is is not just flexible joints and that it can be daunting with every passing day. It is lonely. No one can take that away. But not all of that is true, a fellow zebra can take away some of that loneliness and you are no longer misunderstood. So reach out your hand and I will take it."